He aha e tamariki mamae i te syndrome o Edwards?

syndrome Edwards ' tikanga e te tuarua te nuinga noa (i muri i syndrome o Down), pūira whakararuraru, āhuatanga nei i te hē maha whanaketanga tika fetal, me pera me etahi whekau pūnaha nedoformirovaniem. E ai ki ngā tatauranga e wātea ana, auau o te tātaritanga o tenei mate ko e pā ana ki 1: 5000. I roto i tēnei tuhinga ka kōrero tatou i roto i atu taipitopito e pā ana ki te aha puta te mate Edwards syndrome, me aha e nga tikanga matua o te maimoatanga.

mōhiohio whānui

Na, kia rite ki ngā tohunga, e tika ana ki te maha hē i roto i te whanaketanga o ngā tamariki ki tenei tātaritanga ahu ki te mate i te wawe tau. Ahakoa te meka e kua whanau pēpi e pā ana ki i roto i te wa e tika ana, mahi tinana i te tino iti. Ano, tamariki ki te syndrome o Edwards whakaritea kihai i rite tetahi whanaketanga tinana ranei hinengaro o tiketike-kōeke, rite te putanga, mate nga tamariki i roto i nga ra tuatahi o te ora kotahi tekau, me nga kotiro - mō te ono marama (uaua taea ki te ora ki runga ki te tau kotahi).

tohu tuatahi

huru no te mate e te tohu e whai ake nei:

• taimaha tinana iti;
• uaua horomia;
• roa o / whanaketanga hinengaro tinana;
• ahua motuhake (kaki whanui, notia i te taha o te angaanga, he kauae iti, kanohi kuiti, taringa haka me wahi);
• hypertrophy o te tonetone i roto i ngā kōtiro;
• Pākatokato o te hanganga ure i roto i te mau tamaroa.

Edwards 'syndrome. tātaringa

Whakatau i o te mate i roto i te wahi tuatahi, ko te ki te kawe i roto i whakamātautau pūira motuhake. Ka mau ia ki pūkete te meka e i roto i te hapū te ultrasound kōhanga i mua nei mahi, heoi kahore tonu taea ki te whakatau i te aroaro o te mate. Ko te kupu, e taea te kitea autaki anake Edwards syndrome ultrasound, i.e. i te āhuatanga kaitiaki (hei tauira, i te ngaro o pera-ka karanga "iatuku pito" i roto i te hongere motuhake i te uara iti iho ewe, me ētahi atu). I tua atu, ko reira mo'oni te toru marama tuatahi o te hapūtanga i roto i, kia rite ki ngā tohunga, ara taea ki te tāutu i tetahi abnormalities matotoru i roto i te whanaketanga fetal. Ko te aha e kore tatou e e korero e pā ana ki te materoto i roto i te wa tīkina mō tenei. Te nuinga o nga wahine ahu ki tamaiti e parauhia ka hoatu whanau ki ngā tamariki ki te syndrome o Edwards ki te tūranga mō tenei wā.

maimoatanga

Mea oto, i te tākuta kau e kore e taea whakahere rongoā whai hua i runga i te āhua o ki te whakaora i tēnei mate. Tata 90% o tūroro ki te syndrome o ngā tamariki Edwards 'mate i te tuatahi o nga tau o tona ora (e pā ana ki te 30% - i roto i te marama tuatahi). Te hunga e taea tonu e ora puta noa i tona oraraa poto mamae tonu i ngā momo o mate somatic, me te rerekē retardation hinengaro hohonu.

mutunga

Roto i te whakamutunga, kia tuhia te reira e tenei ra, kei te ngana tonu kaiputaiao ki te kitea te rongoā tika i taua take kino, whakahaere maha akoranga i roto i tenei rohe. Heoi, kāore, whakamatautau horihori tautooraa faaitehia te katoa. E noho hauora!