Te tuahine mate Adelina Sotnikova? He aha tātaritanga Masha Sotnikova, tuahine Adelina Sotnikova?

Te tuahine mate Adelina Sotnikova? Kei te tino maha ui tenei pātai e pā kōpaka taitamariki. I roto i tenei tukunga whakaaro, tuhinga, ua faaoti matou ka whakatapua ki te tumu parau.

Ko wai te Adelina Sotnikova?

I mua i te kitea tatou i roto i te mea te tuahine mate Adelina Sotnikova, faaoti matou ki atu e pā ana ki te kaipara tino korero e koe. I roto i te meka kua tata whakamatauria ai ki te ao e ko te kōpaka taitamariki pai. Ka rite ki matau koutou, tupu te reira i tenei Olympics 2014, i roto i te pa Russian o Sochi. I muri i te pakanga pakeke, me te kawa ki kaitäkaro rawa kaha i ētahi atu whenua mohio Adelina Sotnikova i rite te pai, me te deservedly riro te mētara koura i roto i te kupu kotahi.

Russian record-taata tei mau

Me kï reira e te toa-tau 17-tau o te Olympic Games 2014 e kore riro noa te mētara koura, engari ano ki te whakaatu pehea te nui nga pūmanawa o to tatou whenua nui i roto i te ahua Skating. I muri i te katoa, ka whawhati ia e rave rahi pūkete, i whakahohea ia ki te tiki i mua i runga i ngā. E te ara, i mua te pai i roto i te'eki mali o te wahine te feruri Skating ko Irina Slutskaya, e riro te hiriwa, me te parahi mētara. Wāhanga o te toa o nāianei i āwhina riro mate Masha (tuahine Adelina Sotnikova). I muri i te katoa, kōpaka tautohetia, e kia pea ki te arahi ki te whakatinanatanga pai o te hōtaka i whakamāheretia ai i waho te whakaaro tamau o te whanaunga me hoa o te tangata tona taranata me te manawanui. Na te aha te tuahine mate Adelina Sotnikova? Ko te whakahoki ki te pātai, ka kite koe i te iti i muri mai.

hononga Family

i mua i ara te mahi i te 2014 Olympic Games mētara hiriwa o tangaroa Pākehā Adelina Sotnikova korerotia kaipūrongo e pā ana ki tona hihiri mō atu mahi i runga i te huka. korerotia ia e kua he tuahine e kua etahi raruraru hauora nui ia. Ki etahi whānuitanga tenei hui kino i roto i te ora o te kōpaka, a ko tetahi o nga āhuatanga e pupuri tonu i te reira i roto i te hākinakina ngaio, rawa i roto i te mau taime faufaa. Ko te kotiro, ko te tino nui e hiahia ana ki te āwhina i tona tuahine, a me whiwhi nui taea. i Masha toru ngā mahi. ka mau te reira i te rota o te moni. A i roto i te mahi pera, ratou nui i awhina Tarasova Tatyana Anatolevna. hohoro ia kitea tetahi kaitautoko (kamupene), i utua utu whakahaere katoa. tuhia kaipara e ko ia ko Masha waimarie ki te matua: ratou utuafare tata-piri tonu, ahakoa noho tahi ana katoa ratou anake i runga i ngā mutunga wiki. I hononga tino tata, me te whakawhirinaki o Adeline ki tona whaea. Na mārama ia pehea mama e papa i te wā pakeke.

Te tuahine mate Adelina Sotnikova?

Ka rite ki mohiotia te, te tuahine teina Adeliny Masha mai tamarikitanga, mamae i Treacher Collins syndrome (Treacher Collins syndrome ranei). E te ara, kua tetahi ingoa, e tangi rite "dysostosis maxillofacial" tenei mate onge. Ko te mate tino autosomal āhuatanga e deformation craniofacial tenei. I whakaahuatia tuatahi te reira i roto i 1900 i te ophthalmologist Ingarangi Edward Treacher Collins.

Ko te tohu matua

I tukua tātaritanga tuahine Adelina Sotnikova Masha e tākuta i muri tonu i tona whanautanga. Me kï reira e te taua mate nui āhuatanga e te deformation kitea o te angaanga, me te mata. I tua atu, kia he tangata mate ngaro tino ratou rongo. Ki tenei mate, maha kei te manawanui abnormalities airway pea te ora-te whakawehi. Ko te aha Masha Sotnikova (tuahine Adelina Sotnikova), me te mano o te tahi atu tūroro, tonu kitea e ngā tākuta.

whānuitanga o te mate

He maha ngā nekehanga o tenei mate - e tohu tata äta ki tino nanakia. Me kï reira e te nuinga o te tūroro ki tenei tātaritanga pai underdeveloped wheua kanohi. arata'i tenei ki te meka e te tangata i hanga "whakaukia" fehangahangai he ihu rawa nui, kauae iti me te kauwae iti. Ētahi tūroro hakari, me te mangai ngatata.

I roto i te puka atu nui o te micrognathia mate whakakingitia tamariki te reo kia hanga te reira i te arai i roto i te pū māngai, ai taea te manawanui te whakawhanake abnormalities i roto i nga Airways, e te mea tino mōrearea hoki te ora. I roto i te tikanga ki te ārai i te putanga mate, me kia nekehia atu te kōpani hāparapara. E matau e pā ana ki enei pikonga, i nga mea katoa Adelina Sotnikova tamarikitanga ki te angitu i roto i te Skating me te whiwhi nui te moni, na e tika ana mo te maimoatanga o tona tuahine. Adelina 4 tau tīmata reti ana, a no te mea o tenei hihiri i roto i 8-9 tau ki te mahi i te whika tino matatini i runga i te huka.

Ko te take o te mate

Hoki te tahi mau take ka mate i tenei mate Masha Sotnikova? Treacher Collins syndrome - ko reira anake ngā ira mate. Ko te take tino noa o taua mate ora-te whakawehi, ko te irakētanga tito (ranei te takanga o te mutu codon) i roto i TCOF1 ira, e tika ana ki te haploinsufficiency atu. riro syndrome Vauvauhia e parau tumu tino autosomal, ka kitea anake 1 i roto i te 50,000 hou. Puta ana te mate i te wā tika wawe o te whanaketanga o te kukune. Ki te rā, whanaunga i waenganui i te āhua o te hauora o te whaea papa ranei ki te putanga o taua irakētanga Kua tāutuhia.

Me kï reira e te tino maha kua hoatu he tātaritanga taua i roto i te fare ma'i. No te mea he tohu mārama haumanu (ina koa i roto i kino), ara te strabismus kaha, te rahi iti o te mangai, kauae me taringa, me kamo, me te coloboma ihu rahi te mate. E te ara, ko enei nga tohu o te mate kia uaua reira ki te kai i te tamaiti hou tino kaha, e e tona ora i roto i te ati.

Intelligence me āheinga tinana

Te tuahine Maria Adelina Sotnikova, me ētahi atu tūroro ki Treacher Collins syndrome, i te pae tino ngoikore. Otiia ia reira tino tiaki hinengaro. Taua tūroro mamae wāhanga katoa o paari me ō rātou hoa hauora. Ahakoa kia tuhia te reira e i roto i ētahi wā tonu pea he roa i roto i te whanaketanga hinengaro. I tua atu, maha rongo mate i roto i enei tūroro ai hopearaa kino kupu. Ano, te huringa waho taea kia hoki ngā kōtiro me mau tamaroa e rawa te raruraru hinengaro nui e he uaua ki te whawhai i waho āwhina motuhake.

maimoatanga o te mate

Treacher Collins Syndrome Treatment tei runga i te whānuitanga o te mate tīariari. Tikanga, taua maimoatanga tā te tukanga e whai ake nei:

• tohutohu ira. Ka taea te kawea ratou ki waho mo te takitahi, me te mo te whānau katoa (i runga i ranei he tuku te mate ranei, e kore e rānei) e rua.
• Mau i te āwhina whakarongo (ki te whakawhanakehia te manawanui conductive mate rongo).
• Niho me te maimoatanga orthodontic. He mea tika ki te whakatika i te malocclusion.
• wā Speech therapy ki tohunga, e hāngai ana ki te whakapai ake i ngā pūkenga kōrero. E te ara, a ka mahi Pathologists kupu ki te iwi e whai raruraru horomia kai inu ranei.
• tikanga hāparapara. tauturu i ngā mahi ki te whakapai ake i ahua o te tangata, me te kounga o te ora.